BREAKING NEWS
Roanoke man’s positivity shines through in the face of incurable disease
Read full article: Roanoke man’s positivity shines through in the face of incurable diseaseRoanoke man Mark Kay shows unwavering positivity and resilience in his battle against ALS, also known as Lou Gehrig's disease. Despite the challenges he faces, Mark stays optimistic and uses his voice to raise awareness and advocate for people with disabilities.
FDA advisers vote against experimental ALS treatment pushed by patients
Read full article: FDA advisers vote against experimental ALS treatment pushed by patientsFederal health advisers have voted overwhelmingly against recommending approval of an experimental treatment for Lou Gehrig's disease, the fatal muscle-wasting disease.
Experimental treatment pushed by ALS patients gets day before FDA, but agency unconvinced it works
Read full article: Experimental treatment pushed by ALS patients gets day before FDA, but agency unconvinced it worksThe Food and Drug Administration meets this week to consider a much-debated treatment for Lou Gehrig’s disease.
John Driskell Hopkins, founding member of Zac Brown Band, has ALS, he says in video
Read full article: John Driskell Hopkins, founding member of Zac Brown Band, has ALS, he says in videoJohn Driskell Hopkins, a founding member and the bassist for the country music group the Zac Brown Band, says he has been diagnosed with Lou Gehrig’s disease.
Pressured by patients, FDA reviews ALS drug with modest data
Read full article: Pressured by patients, FDA reviews ALS drug with modest dataThe Food and Drug Administration meets next week to review a closely watched drug for ALS, or Lou Gehrig’s disease, following months of lobbying by patient groups and congressional lawmakers.
Larry Falivena has ALS, and he's visiting all 30 MLB ballparks
Read full article: Larry Falivena has ALS, and he's visiting all 30 MLB ballparksLarry Falivena is spending three months traveling to MLB ballparks in an RV, and his family has joined him. But for Larry Falivena, a husband and father of two, accomplishing that goal is about much more than the game. A nod to "Iron Horse" Lou GehrigIn February, Larry and Shana Falivena met with the CEO of the ALS Association, Calaneet Balas. Gehrig, dubbed the "Iron Horse" for playing 2,130 consecutive games, retired from baseball in 1939 after being diagnosed with ALS. "This mission is more important than being comfortable and safe and protected in our own little bubble in Apex," Shana Falivena said to CNN.